I WANT TO BE HEARD
Isabelle C.
canvas, acrylic paint
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In 2018, my father had a brain AVM, an arteriovenous malformation, when I was in third grade. My family and I were unaware of what an AVM was at the time and the impact this would leave on our lives as I never anticipated the suffering of a loved one at such a young age. Ever since, my family and I have aimed to spread awareness about this rare but deadly disease to protect themselves and their loved ones. My father’s brain AVM drove me to become a Youth Ambassador for the Aneurysm and AVM Foundation (TAAF). TAAF provides a safe space for everyone to share their voices and experiences. In my piece, I depict the longing of the voices of those affected by rare diseases to be heard. I believe that everyone's story is important, whether they have personally encountered a rare disease or not. By shedding light on these experiences, I hope to inspire empathy, raise awareness, and create a community of support for those facing the challenges of rare diseases.
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Creativity means diving into the depths of one's unique experiences and stories, giving them a voice and a platform to be heard. Through these personal narratives, we can shed light on the struggles and triumphs of others. By embracing our creativity, we can create a more inclusive and compassionate world.
